Quote - Acadia, it's not high bloodpressure that's causing the light headedness is it?

Unlikely.  My blood pressure is slightly elevated, but it has been for years before I went off work sick in 2004. It wasn't until I was off work for about 5 months or so that I started to feel light headed and actually faint at times.

So far as my blood pressure goes, it's usually about 140/90 or so, but if they give me anything for it I can't function because the act of being upright has me having pre-fainting symptoms. Once they took me off of those, it cleared up.
I had a bunch of cardiac tests and my heart is healthy and it's not due to my heart.

I have had 4 years to research my symptoms, and based on the symptoms, and a positive anti-nuclear antibody blood work result which my doctor was a bit worried about but not enough to conduct further neurological testing, I believe that I have Dysautonomia.

http://www.dinet.org/symptoms.htm

I'm a walking text book case based on those symptoms because I have most of them.  There is no cure, it's basically just symptom management. And the fact that I'm able to return to work is because some of my symptoms are finally being managed, and my body has become accustomed to others and I've learned to work around them.

The problem with something like this, unless you see  a specialist or a doctor who is really up on their knowledge base, cases such as mine get misdiagnosed or not diagnosed at all because instead of looking at the big picture, they only see individual problems and don't connect it together into an actual illness. And I believe that is what has been happening to me. My doctor saw "pain", "fainting", "high blood pressure" etc. etc....but didn't put it together.  The next time I go to the doctor I'm taking a print out and am going to ask to be referred to a neurologist, who would have been able to connect the dots. 

"It is good to see ourselves as others see us. Try as we may, we are never
able to know ourselves fully as we are, especially the evil side of us.
This we can do only if we are not angry with our critics but will take in good
heart whatever they might have to say." - Ghandi