Please read Last week I started with new extra volunteer work. It’s with people that have Huntington disease. Huntington is a genetic disorder, which affects muscle coordination and can lead to dementia. Since it’s a strong genetic disorder it means any child of an affected parent has a 50% risk of inheriting the disease. We went swimming with some patients since that relaxes their muscles and mean less weight. It so great to see the excitement when walking (with wheelchairs) to the special pool. When they’re in the water you feel and see how much they enjoy it. Also 2 family members were there to help and spend some quality time with their loved ones. After we returned to the ward I ended up speaking to a family member. She is a young daughter of a patient. We did a cup of coffee and smoke while just speaking a while. Different topics like genetic testing, marriage, kids but also her mother’s old hobby painting came up. Some people say how sad or tend to slowly fade away when a person gets seriously sick or has severe accident. That young women said some words to remember “pity or sorrow we don’t need. Tread us normal like a person just respect our limitations”. Next week we have Pancake Day. Sure it will be fun to make and eat pancakes with patients and families. Big hug and thks looking and for reading Stephan