Mon, Sep 30, 8:42 PM CDT

Columns + My cancer: update

Photography Fractal posted on Jan 07, 2015
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Playing with my photos and Mehdi's kaleidoscope plugin. UPDATE about my cancer: We've spent a whole day struggling with the news we got on Monday and what to put here and how to say it, and decided to give you all an update on my lung cancer after my oncologist appointment. . Sorry that this is the way some of you are finding out, but we just haven't had the energy for phone calls or personal messages today. . We've recorded (with permission) all that our doctor said during the appointment so that we could remember it accurately and refer to it as we come to terms with it all, and here's a significant excerpt. . After being told all the facts known so far, and the likely possible scenarii, I asked: "Overall, how dire is my situation considering the elements you have now in your possession, with the data you have now? How bad it is on the scale of lung cancer?" . He said: "I mean I’d love to say that, for a 44-year old, this is not a bad thing, but there are a lot of bad features here. And I’m an optimist, that’s how I come to work every day, but I – unfortunately – I’m gonna suspect that this is not gonna be curable. I’m gonna suspect that everything we’re trying to do is to buy you time. I’m going to hope that that amount of time is going to be measured in years. I do have some patients comparable to you who are alive 2, 3, 4, 5 years later, but to promise that or to promise more than 5 years based on what I think is going to end up being your stage, would be unfair." . I (and Denise) do need to come to terms with that possibility. . Please do not simply try to cheer us up by denying the reality of our situation, and tell us something along the lines of "oh, you'll get through this and be okay!". . We feel that this is not helpful, especially right now, and is even hurtful to us. That does not mean that we don't hope for the best, it is just that we need to come to terms with it all in our own time and words. . Denise and I will stay positive and make the best of it, no matter what. . That said... . One positive thing happened already today: i got a bone strengthener IV infusion, which already feels like it helped some. The purpose of this is to help my bones to prevent further possible breaks, and maybe even get the affected ribs stronger. . Radiation begins on Thursday, as well. Chemo is a possibility, depending on the PET scan results. Surgery is not likely an option. . That is all we know for sure for now. . Thanks for your support, prayers, help and understanding. Jean-Luc & Denise Previously: "Caterpillar" href> thumb_2589750.jpghref>"

Comments (5)


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MrsAjrarn

8:53PM | Wed, 07 January 2015

Lovely columns, and a well-worded update.

Jean-Luc_Ajrarn

8:54PM | Wed, 07 January 2015

Thanks! :) We are on this boat together!

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magnus073

9:37PM | Wed, 07 January 2015

Jean-Luc, it is so sad to hear this news and you and Denise do have a lot to deal with down the road and now. I'm going to add both of you to my prayers and pray that God will grant you the best quality of life for as long as possible.

Jean-Luc_Ajrarn

3:41AM | Thu, 08 January 2015

Thank you very much! :)

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donnena

9:45AM | Thu, 08 January 2015

LOVE the K-Scope!! Not so thrilled with your news! My heart breaks for you. I will pray for you and your families!

Jean-Luc_Ajrarn

1:16PM | Thu, 08 January 2015

Thank you! :) I am making lots of kaleidoscopes from my photos these days, as they are fun and take my mind off more serious matters. So you'll see (and like, hopefully) many more of them by me! :)

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woodywoo

1:30PM | Fri, 09 January 2015

"In the depth of winter I finally learned that there was in me an invincible summer." Albert Camus

Jean-Luc_Ajrarn

1:37PM | Fri, 09 January 2015

Wonderful quote, thank you! :)

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flavia49

8:05AM | Sun, 11 January 2015

I'm so sorry. In some way I know what it is, because I hat to deal with my mother pancreatic cancer years ago. I wish you all the best. Beautiful image

Jean-Luc_Ajrarn

11:32AM | Sun, 11 January 2015

Thank you! :)


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