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That which can't be titled

Photography Portraits posted on Apr 05, 2005
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Description


I'm very conflicted about adding this image.It's a picture of my very dearest friend and her daughter,Lindsey, who passed shortly after this was taken. Lindsey had a horrible genetic disorder called Tay-sachs.It is a very rare disease these days because there is pre-natal screening for it.Unfortunately, technicians are human,and tests can be misread. Lindsey lived much longer than was anticipated, because of the tremendous effort of my very best friend, Debbie. Life expectancy for Tay-sachs is barely over a year.That's because many are institutionalised and left to starve because no means are taken.Lindsey 'lived' til she was five years old, because Debbie refused to 'put her away',(yes, there are others) and let her starve and die a slow miserable death.I was and am honored that Debbie let me photograph her and Lindsey.The effort on both their parts,for this shoot, was beyond anything I could describe. I post it because this photograph is a miracle...After I got my five or so shots, Lindsey clearly was in distress.I wanted to take more but it was out of the question. I finished the role with some nonsense and when I wound the film ...it ripped. And then, I did the most asinine thing ever.Without thinking, I opened the camera and exposed the film. So, this picture really shouldn't exist.But I think it was meant to survive. It's a testament to Lindsey and also ,I think,THE BIG GUY, up there,who wanted it to be.Thanks for looking.I hope I didn't depress anybody too much.I said I was conflicted because I didn't want that outcome .I really just wanted to share the miracle.Love you Linds.Love you Debbie.

Comments (28)


soloshado

12:22AM | Tue, 05 April 2005

Beautifully touching photograph. It can be so hard when the one you love is suffering and there is nothing you can do but hold them.

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Zacko

12:39AM | Tue, 05 April 2005

What a remarkable photograph. They say a picture speaks a thousands words...but thats not nearly enough what this one does. I think this is such an amazing tribute to life and to your friend. Thank you sooo much for sharing this with us. You are right...this one survived for a reason.

cynlee

1:13AM | Tue, 05 April 2005

i could cry but this is life & so real & so touching & beautiful, the luv & care that is shown here in your friend & in you... (i think quite a few of us has opened the cam & exposed the film by mistake, makes this even more precious)

)

kimariehere

1:18AM | Tue, 05 April 2005

thank you for sharing this miricle.. it touched my heart so deeply... i was moved by what you wrote and your compassion for this dear family...it was i call it a "GOD thing " yes it was meant to be.. it is a great tribute for remebering her precious life! (tears)

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Enmos

2:41AM | Tue, 05 April 2005

Thats so sad :o( But i think this picture indeed survived for a reason. Very moving story, your best friend is a saint, a true one !! I agree with Zacko, this picture is a beautiful tribute to life and to your friend. Take care, Jeroen.

logiloglu

6:09AM | Tue, 05 April 2005

it touchs my heart deeply. even it is a sad story, there is so much love and life in this image.i am so sorry for Debbies lost.a wonderful tribute ,Marlene.

)

diomedes66

8:46AM | Tue, 05 April 2005

How heartbreaking. Your story is one of bravery, love, and depth of feeling beyond conception. A superb tribute.

)

SoulSearcherr

10:45AM | Tue, 05 April 2005

very sad..but I am glad your friend had her beautiful daughter..she has her beautiful memories to cherish forever..my thoughts are with her

kellendor

2:03PM | Tue, 05 April 2005

I am crying. Wow. What a wonderful story. I am positive God meant for that image to be spared, so Lindsey's story could be told here and thus bless many. Thanks for sharing it. Thanks to Debbie for her courageous love. I will pray for Debbie and all who loved Lindsey. Blessings to you all. Thanks again for sharing this!!!

)

Lledeline

2:36PM | Tue, 05 April 2005

No words, only emotion.

b2amphot

10:12PM | Tue, 05 April 2005

Would that I could articulate the feelings this piece has stirred within me. God bless you, Debbie and Lindsey.

FuzzyShadows

10:52PM | Tue, 05 April 2005

Beautiful.

)

Margana

6:01PM | Wed, 06 April 2005

Thank you all so much for your kind and generous thoughts.I appreciate so much your making the effort to comment, it couldn't have been an easy thing to do.You're all wonderful.

)

CDBrugg

6:46PM | Wed, 06 April 2005

my most sincere sympathies for your friend

)

jocko500

6:54PM | Wed, 06 April 2005

so sad but the love shows is here

tvernuccio

7:36PM | Wed, 06 April 2005

makes me cry and gives me goosegumps. Lindsey was a miracle and so is your photograph. i'm sure Debbie will treasure this forever!!!! i'm so glad you uploaded this to show us this image of love, inspiration, and hope!!! favs.

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TomDart

7:40PM | Wed, 06 April 2005

I caught your "last snow" image with the dogs..very nice. Then the notes got me here to this one. Pathos, empathy, connection in different but similar paths of life..all this is this wonderful and yet unpleasant image. Thanks very much for this image I need to see but can't view often. TomDart.

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archieb

9:55PM | Wed, 06 April 2005

Thanks for posting this image, it is one of my favorites becuase it is so beautiful, but it is also very sad and moving. There is so much love in debbie for lindsey, ill never forget her :)

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sharky_

3:01AM | Thu, 07 April 2005

My Heart and Prayers goes with them. Aloha

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Emberhaze

1:41AM | Sun, 10 April 2005

I am speechless...as Lledeline said,"No words, only emotion."

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marybelgium

2:28AM | Tue, 12 April 2005

A wonderful tribute ! Beautiful touching photo...most sincere sympathy for your friend.

)

tibet2004uk

11:43PM | Tue, 12 April 2005

U just made me cry!! This story with that shot is too moving for me...can't see the bloody keyboard anymore.....tears...all over....

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mireille

6:31PM | Wed, 13 April 2005

Thank's for..posting this photo...I am shaken up by this intensity....but this is real life...and you showed us...that even in the most sad human situations..there is life, tenderness, care, devotion and abandon..this is just a butiful tribute to love and caring...My special toughts for your loving and devoted friends.that for sure, gave a lot of love and joy to her child ..and for this little child...to be comfortable now...gone with lot of care ....Thank's for this intense moment that you both shared !

)

RodsArt

6:45AM | Wed, 11 May 2005

Thank you for sharing the tragedy, courage, and love captured in this moment.

Mugsey

7:36PM | Mon, 20 June 2005

That baby was loved while she was here - HEY PEOPLE - NEWS FLASH! THE PICTURE THAT YOU ARE NOW VIEWING REPRESENTS THE ONLY THING THAT MATTERS IN ALL OF EXISTANCE! EVERYTHING ELSE IS INATELY POINTLESS AND MEANS EXACTLY ZERO!!! P.S. - This picture DOES have a title...it's "ALL THAT MATTERS"...

)

Digimon

11:09AM | Thu, 11 August 2005

To call this a miracle is a bit of an understatement, I am stunned by your story! I feel very honored and touched to have viewed this. A touching memorial, and driven by fate. I knew a young man who was afflicted by Ataxia, and he knew his life would be short. I felt honored to know him, and I was immediately blown-away by his attitude toward life, for which he had been short-handed. He had an amazingly serene view of life. The clich"Live every day as if it were your last" was his M.O. I believe we are blessed to meet these wondrous spirits, as living reminders of the preciousness of our existence. And they serve to remind us that the clichis not really a clich Thank you for sharing this touching memorial.

)

TwoPynts

4:13PM | Mon, 13 March 2006

Wow. Powerful image and story Marlene. I count my blessings each and every day that my kids are healthy. Thanks for sharing this, hard to view and read thought it was. Truly a testament to a mother's love.

)

TheWarlock

12:51AM | Sat, 06 May 2006

A history behind every smile, a sorrow behind every brow, there's a story behind every piece of art and it is not just love and hope which make the colors. It is determination and the extra inch one would move to frame a shot like this and frame it with precision of truth. Truth, indeed is a very complicated subject to deal with simplicity. It is hardly acknowledged but you have.


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