Message from my wife and myself: Well, there's some bad news since you last heard from us. They realized yesterday that Zane's been having seizures so they put him on...umm...you guys know it....feno something. That's stopped them, but he will have to be on it indefinately. They did and EEG and they're doing an MRI early this week, so those things will help us figure out what this is. The genetics test should be back wed or thurs. Jason and I searched the internet yesterday and we found something called Aarskog Syndrome that has a lot of his symptoms. We are hoping that's what it is...because it's pretty mild compared to the other stuff it still could be. If you guys find any other information on it...please feel free to send it to me. I couldn't find that much about it. Just the symptoms..etc. It did say that it's most common in males and it causes reduced fertility..not INfertility...just reduced....so that's good. If you guys can find some stuff about it...that would be great. But...that might not even be it. We're just hoping it is. We'll ask the doctor about it soon. Please keep praying for him. We'll keep you posted. voodooninjax@hotmail.com mommykiza@hotmail.com Love and Thanks Bakiza, Jason and Zane

daddy's boy, when he was on the vent(off now)

Really hope it'll be ok for your baby, it'll be something that don't last, frightening like a storm but once away a beautiful blue sky. I really hope very strong (would love to be able to do more, believe me but maybe a lot of hope can do something :) J-L

My prayers are still with you and your family...I am hoping that soon everything will be okay and he will turn and look at you and you will be able to see him saying "Hey had you worried didn't I?" He looks so precious..I really hope you keep us all posted on how everyone is doing.. Leigh

Yep, hang in there we are still praying for you all.

my heart goes out to you guys....try to keep your hopes up tiny lives have a lot of fighting spirit ...i have a feeling things are going to work out ok for you... just gota weather the storm till the sun breaks through...

I don't know you, but I want you to know that your child has been on my mind since I saw the first picture of him. It upset me, yet, it affected me deeply in a positive way. I don't know if I can send the vibrations you need, but I do want you to know that your family is very much in my heart.

I will have you in my prayers all day long. Please keep us updated. Blessed be. Clint

Best wishes and good luck wih it all

Attached Link: http://www.mostgene.org

Dear V, Let me first express my concern and hope for Zane. Hope is the operative word here. I have been a teacher specializing in children and young adults with special needs for almost a decade now and I have seen hope and prayer accomplish some amazing things. The website below may be helpful to you and if not, it can probably point you in a positive direction. I teach in Texas and resources vary from state to state, but please contact me if you have any questions or think I can help in any way. PS - The Phenobarbytol may only be a temporary necessity. Prayers are with you.

prayers for your child and for both of you continue...

My two youngest daughters were both premature. The baby..lol...17, now, was kept in the hospital for almost 3 months, and put on phenobarbital too. She would have spasms, but no one ever figured out why she had them. The nurses seemed to notice that she would cry and cry and then spasm. They finally sent her home...She has been fine, ever since. My heart goes out to you. It is soooo hard waiting for a baby and then going through the anxiety of having him endure a long gruelling hospital stay. Hospitals do tend to err on the side of being safe. You little one may grow out of it too. (They said they thought in my daughter's case it was induced by frustration.)

will be praying for you, I know it takes allot of strength and prayers to get through having a child sick so hang in there and know you are in our thoughts and prayers

Still sending postitive thoughts Zane's way... Hang in there... {{{Hugs}}}

My very best wishes to you all... hope everything turns out well.

Still thinking of you all... All my hopes, Dal

My love, my hope and my prayers, go to in this dificalt time. Be strong. Andrea C

Poor little guy. Hope things come out OK, and soon.

Hi Folks! Hang in there, pal! Peter (Dr Zik)

All our hopes and prayers go to you and little Zane... Hang in there little guy!!!

Add my prayers, too. With so many people praying for this, things can only be positive. Bless little Zane. Melanie